N13 Low compliance with remote monitoring of patient-reported outcomes via digital application in patients with inflammatory bowel disease
نویسندگان
چکیده
Abstract Background Remote management through online web-based services can reduce healthcare utilization and improve the quality of life treatment adherence IBD patients compared to standard care.However, actual compliance durability remote follow-up protocols in have not been well studied. Aim To describe with mobile-app patient-reported outcomes (PRO) questionnaires a long-term monitoring program for Methods Retrospective cohort study that included Crohn’s Disease (CD) or ulcerative colitis (UC) treated at tertiary center. Patients received via specialized smartphone app Datos Health™.The following questionnaires: IBD-control,Patient-Reported Outcomes Measurement Information System (PROMIS-10), Short Questionnaire (S-IBDQ), Patient Reported Outcome-2 (PRO 2). Results 402 were enrolled program; 299 (74.4%) had CD 103 UC (25.6%). 187 (46.5%) male, 16(0.04%) naive biological therapy, 189 (47%) their first therapy. Median age as 35.68 (interquartile ratio (IQR)- 35.68-43.31) mean disease duration 9.8 years (7-14). SIBDQ was sent 515 (398-577) days,20 (15-23) sent, response rate 23%. After 30 days -62(15.4%) still responding, 100 days- 36(9%), 1 year- 40(11.3%). PROMIS-10 median 482(365-574) days; 17(13-20) 13%. -27(6.7%) after 21(5.2%) 34 (8.5%). IBD-control 515(397-584) 21(15-23) ,response 22%. -63 (15.7%) 37 (9.2%) 40 (10%). PRO 2 361(144-447) days;107(47-140) rate-11% days-47(11.7%), -23(5.7%) year -36(9%) responding Figure 1: The filled over time SIBDQ; Questionnaire. PRO-2; Patient-Reported 2. Promis-global 10; . IBD-control. Conclusion Long-term is associated low high withdrawal rates.Future design such programs should accommodate patients' needs, incorporatE rapid rule-based feedback devise smart adaptive frequency strategy avoid alert fatigue increase compliance.
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Disclosure: Prof Dr Axel Dignass has received grants/research support from the Institut für Gemeinwohl and Stiftung Leben mit Krebs, and honoraria or consultation fees from AbbVie, MSD, Ferring, Roche/Genentech, Takeda, Pharmacosmos, Holystone Biotech, Falk, Mundipharma, Toray, Allergosan, Hospira, Robarts, TFS Trial Support, and Sandoz/Hexal. He has participated in company-sponsored speaker’s ...
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ژورنال
عنوان ژورنال: Journal of Crohn's and Colitis
سال: 2023
ISSN: ['1876-4479', '1873-9946']
DOI: https://doi.org/10.1093/ecco-jcc/jjac190.1072